This study investigates the perceived stress of patients with Chronic Spontaneous Urticaria (CSU) and how it relates to their perceived symptom control. Using a combination of validated tools like the Urticaria Control Test (UCT), Short Stress Overload Scales, and the Dermatology Quality of Life Index (DLQI)
Aim: This project will be one of the first to link stress perception with symptom control. We aim to explore how patients perceive their stress and how it directly impacts their sense of control over symptoms. By distributing our online questionnaires to your CSU patients, we hope to contribute to insights that could lead to improved interventions for stress management and symptom control. Participating clinics will be acknowledged in any resulting publications.
Project lead: Jennifer Donnelly (PhD Candidate, St James’ Hopsital, Dublin and the Centre for Positive Health Sciences, Royal College of Surgeons in Ireland), Dr Niall Conlon ( St James’ Hospital, Dublin)
UCARE Project advisor: Emek Kocatürk, Ana Gimenez-Arnau
Steering committee: tbd
Status: This project and questionnaire is currenlty being conducted within Immunology clinics at St James’s Hospital in Dublin (n=68), and we are now piloting the expansion of the online questionnaire to different countries involved in the UCARE network
Number of patients included (aim): 200
Number of UCAREs (aim): 5